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cassandrajade

Bad control and now pregnant.

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cassandrajade

I feel so bad.

I've had bad control of recent, and now i'm pregnant.

I keep worrying that my child (if they make it to birth) will be unhealthy or something.

 

The doctors I see always tell me how horrible everything will turn out if I get pregnant with high levels. There really nasty, and I know there meant to be strict, etc, but she's just straight out nasty. :(

 

I've quit work recently due to anxiety and stress so my levels have been tightly controlled again.

 

Any one else worried about this?

 

 

 

By the way, I'm 19, a child care worker and currently engaged, planning on marrying in September 2011.

I've been a type 1 diabetic since I was 18 months old.

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Subby

Hi there. It's no good if a health professional makes you feel bad. Sometimes they need to tell you some unpleasant truths. But it should be done with care and they should turn the discussion to positive things - like what you can do from herein out.

 

If the doctor you have been seeing has been "nasty" about things, it's time to find someone more sympathetic. That doesn't mean they ned to be a yes person (they should tell you the truth, and if you need to go for better control - you need to go for better control) but it should not seem imperious or arrogant.

 

On this forum you have T1s who have both been dealing with control issues for years, finding different solutions. You also have T1s who are pregnant or been pregnant and could offer you great support and tips.

 

If you let us now what is going on more specifically, it can open conversation that can help you tackle your control issues one at a time and in a way that will make a difference. I'd highly recommend you just let us know a bit of the specifics of where your difficultes lie (knowing that generally, we don't judge because we are there/have been there/understand it is not always straightforward).

 

And get onto medical help that you feel is supportive of you.

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rak1978

Cassandrajade, no more worrying! It doesn't do you or the baby any good. You have come to the right place for support and ideas to help you gain better control. It's tricky, isn't it? I was diagnosed 8 wks into my second pregnancy (having sugar in my urine for up to a year prior). So, it's safe to say I had terrible control for the most crucial time. I was beyond worried. First off, I was told that I was diabetic (type was in question depending on who you asked) and would be taking insulin for the rest of my life. Second of all, I was dropped from my doctor's care in the same phone call because I was now a high risk case and they couldn't handle my care. It was stressful to say the least, and if you read around on the internet (which is of course what I did right away), you will not find much good to be said about uncontrolled blood sugars during the first few months of pregnancy. Well......I am writing this to tell you that it all turned out just fine. My son is an amazing four 1/2 year old that never ceases to make me laugh. He was completely healthy at birth. The only side effects that I can think of from my sugars being uncontrolled were that he was hypoglycemic at birth and he was on the large side (9 lbs 11 oz). Other than that, no problems at all. I've had another baby since then also with no ill effects (other than him being huge...10 lbs, 3 wks early) and my sugars, despite my best efforts, were not great during that pregnancy either. It's tough to manage your blood sugar especially during pregnancy, but you will be fine. Hang in there...I know it's stressful, but you can only do your best and then just let go and trust that someone greater than us IS in control. If you're having specific control problems, I know there are lots of smart people on here who can help. :)

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Katrina Stovold

May I ask exactly how bad is your control? Is youR HBA1C over 10%??? My doc said many type 1's arrive pregnant with hba1c's of10% then quickly get under control!! Your chance of misscarriage is higher but not necessarily that bad for baby as long as you quickly get your levels under control!! xx I know it sux to hear negative things from doc, but in a way it is a good thing.........helps you get focused and strict!!

 

 

 

 

Cassandrajade, no more worrying! It doesn't do you or the baby any good. You have come to the right place for support and ideas to help you gain better control. It's tricky, isn't it? I was diagnosed 8 wks into my second pregnancy (having sugar in my urine for up to a year prior). So, it's safe to say I had terrible control for the most crucial time. I was beyond worried. First off, I was told that I was diabetic (type was in question depending on who you asked) and would be taking insulin for the rest of my life. Second of all, I was dropped from my doctor's care in the same phone call because I was now a high risk case and they couldn't handle my care. It was stressful to say the least, and if you read around on the internet (which is of course what I did right away), you will not find much good to be said about uncontrolled blood sugars during the first few months of pregnancy. Well......I am writing this to tell you that it all turned out just fine. My son is an amazing four 1/2 year old that never ceases to make me laugh. He was completely healthy at birth. The only side effects that I can think of from my sugars being uncontrolled were that he was hypoglycemic at birth and he was on the large side (9 lbs 11 oz). Other than that, no problems at all. I've had another baby since then also with no ill effects (other than him being huge...10 lbs, 3 wks early) and my sugars, despite my best efforts, were not great during that pregnancy either. It's tough to manage your blood sugar especially during pregnancy, but you will be fine. Hang in there...I know it's stressful, but you can only do your best and then just let go and trust that someone greater than us IS in control. If you're having specific control problems, I know there are lots of smart people on here who can help. :)

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cassandrajade

Thank you all for such quick replies.

 

My control is bad because

1. failing health care system. I get an appointment every 6 months at best.

2. i've recently gone from childrens to adult hospital, yet they still treat you like a child. weird. they don't know you as well and seem to assume your not trying at all.

 

 

My hba1c is over 10%, yes.

I've only been under 7% once or twice in the last few years, after numerous hypo's that they blamed on me being "immature" and "not looking after myself"

 

I'm currently taking Humalog at each meal and Lantus at dinner, using the pen's.

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Subby

Cassandra, if you find the health care at the hospital is not serving you, it's time to branch out and find another endo and/or a DE practising in your area. There are usually many around especially if you are near metro.

 

There is sometimes a wait of a month or two to get in the first time to see an endo. Once you have seen them once, though, it is usually quick to get in to see them.

 

It is not free, no, and I guess that is what you are used to with the hospital. Well, medicare will still refund heaps of an endo visit. For example, the endo I last saw cost me $130. Medical gave me back $95 of that. So it cost me in real terms, about $30. That I think is really reasonable considering how vitally important it is to look after your health and see the right doctor.

 

Diabetes Educators, away from hospitals, unfortunately, are not covered by medicare (I am almost certain but can't find clear indication on the medicare site). But there is something I think is very important for you if you are looking for more affordable healthcare (any diabetic Aussie should know about this) -

 

Talk to your GP about a "care plan". This is something that GPs can organise, that give you medicare rebates on things like visits to Diabetic Educators as well, or a number of related services for a chronic condition like diabetes.

 

So you need to get involved here, it's not going to happen itself. But with a little prodding (to get the care plan, to ask around for a decent and reasonably priced endo) and with a little money, you can find good healthcare and certainly organise to see the doctor as often as you wish. 3 months would be ideal at least while you are pregnant and really want to make some gains on your cotrol.

 

Good luck and I wish you well. If the organising all sounds a bit to much, I wonder if someone, a friend or family member, might give you a hand with some of the admin stuff? Otherwise, I think a good GP, if you can find one, is a great enabler to use the existing affordable health services to maximum benefit.

 

A note about your control. With a good doctor, and thinking about things carefully, it is not necessarily lots of work. Your doses might be all wrong. You really want to get to someone who might be able to tweak things to work a lot better and a lot easier. I hear you about the stress, it does a number on me too. The answer might be you need bigger doses in times of stress, again it would be good to get proper help with working that out.

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cassandrajade

I have been speaking with my mum about finding a different method of seeing the right doctors,

I'm currently unemployed and unable to afford it right now though.

 

I noticed you're on levemir.

does it work well for you?

It wouldn't work with me, so I had to transfer to Lantus.

(I'm using pen's though, not a pump.)

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Subby

Hey, that's great you are talking to your mum. Let her know about the "care plan" to talk about with a GP. GPs usally know good specialists to refer to in the area, too. But of course, you need to start with a good GP who know these things and will help take care of you. Remember, if you find a reasonably priced endo, you will only be out of pocket a small amount once you get your medicare refund. Cash flow can become a bit of an issue if you are strapped for money. I've been unemployed and at the time I'd time an expensive doc with when I had some money in the bank, then straight to a medicare office, that way it doesn't sting nearly so much. In fact some places now give you the refund on the spot.

 

The levemir works well for me, compared to the Lantus which I was on for years but made me feel sick and didn't give me control. These things tend to be individual, some people Lantus works great, others Levemir might be better. Trying things out for yourself is the best bet. Finding out, or sticking with what you know works and working with that is the way to go. Looks like you've been doing this yourself.

 

I'm on shots too for the moment. The pump uses rapid acting insulin like novorapid all the time, and I have a problem with the pump that it makes me feel quite sick, a bit like the Lantus. I seem to be cursed with being allergic to a lot of insulins once I have a certain amount in my system. I don't get that with Levemir.

 

So that just goes to show variety out there, pumps are great but are not always the best choice for individuals, either. You can do a lot with injections. We all need to find our own solutions and work with what we've got.

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rak1978

Cassandra, Obviously, I know nothing about the health care system in Australia, since I'm from the U.S., so can't advise you there. Seems like Subby provided some good suggestions on that issue. I wanted to encourage you (and I'm sure you are quite aware already) to try your best, do whatever you can to nip this in the bud right away. How far along are you, by the way? Especially in the early stages, you are putting the baby and yourself in harms way if your blood sugars are in the ranges you mentioned. I know it's challenging, believe me, I know! But, the sooner, the better. You may have to find some solutions on your own (and hopefully get some good help here) before getting in to see a new doctor. Time is of the essence when it comes to pregnancy.

I know this is a different tone than my first response, but I didn't realize your numbers were so high. I still stick to my original response to not stress! Worrying will only cause harm. I can sympathize with you and your situation. Like I said before, maybe if you give some details of the specific control problems you're having, some of the more experienced people here can offer up some help?

Take care! :)

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Katrina Stovold

Just wanted to say the Health Care System here in Australia is great!! I see the diabetes centre every 4 to 6 months and they do a thorough check! This is all free...I can call up anytime if I feel I need assistance in changing my doses.....but having had diabetes for almost 10 years I find I am the best at controlling my sugars, I know my body better and seek their help if I require it or need clarification of what I am doing..........BUT as soon as I became pregnant the care I was given went overboard........the RPA hospital makes me come in every 2 weeks which I think is too much.......but dont mind as the care is there........this is all free by the way, covered by the government (Im here in Sydney). I call whenever I want and they are very very very helpful over the phone and help me if I need adjusting! They are very strict with me which I hated at first but am glad now as they keep me on my feet! Never have I had such good control of my diabetes until pregnant (hba1c 5.9%) and it is only becase they are constantly on my back! I dont care.......look what I have acheived for my baby! so, I must say the Health Care system here in Aus is fantastic and very very supportive and most of all its free......Im having my baby in a public hospital, a very good one that has a series on tv here in Aus - RPA, everyone speaks very highly of the RPA. Really, no matter how much care you get it really is up to the individual to control their own sugars, we know us best, its great to know we can easily reach out by simply dialing a number if we need help! x

 

Cassandra, Obviously, I know nothing about the health care system in Australia, since I'm from the U.S., so can't advise you there. Seems like Subby provided some good suggestions on that issue. I wanted to encourage you (and I'm sure you are quite aware already) to try your best, do whatever you can to nip this in the bud right away. How far along are you, by the way? Especially in the early stages, you are putting the baby and yourself in harms way if your blood sugars are in the ranges you mentioned. I know it's challenging, believe me, I know! But, the sooner, the better. You may have to find some solutions on your own (and hopefully get some good help here) before getting in to see a new doctor. Time is of the essence when it comes to pregnancy.

I know this is a different tone than my first response, but I didn't realize your numbers were so high. I still stick to my original response to not stress! Worrying will only cause harm. I can sympathize with you and your situation. Like I said before, maybe if you give some details of the specific control problems you're having, some of the more experienced people here can offer up some help?

Take care! :)

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codysue

if you were in poor controll, now is the time to fix it. you can't change what has already happened, but you can be in controll of what happens from now on. I am a type I diabetic currently in my 34th week of pregnancy, my first son was born 9 years ago under much poorer controll and much differant circumstances. thank god he turned out ok. knowing what i know now about diabetes and pregnancy it scares me to think what could have happened, it's a lot of work to be diabetic and pregnant, but the work is worth the health of your baby. you have to be willing to put in the effort. do you have a pump? i did not with my first pregnancy, but do now. you need to find an ob/gyn who is comfortable with diabetes care and who is supportive of you. also maybe find a good diabetic educator to help you and talk with you about some of the issues realated to diabetes and pregnancy. hopefully your fiance' is suppotive of you and comfortable with helping you control your diabetes, having a good support group of family and medical professionals makes all the differance. your insulin needs will flucuate a lot during pregnancy. make sure who ever you spend time with knows how to recognize the symptoms of hypoglycemia, i had a lot of scary lows in my first trimesters.

the best thing for you to do right now is to make a decision to be in control, somedays are better than others. you can do it. your baby will thank you.

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cassandrajade

I'm so glad that the health care system is supporting you!

I will admit when I was in my younger teens, (14-17yrs) I wouldn't visit the hospital appoints, I would refuse to worry, etc.

 

These days I'm more concerned with my health because I want the best for myself, my partner and our child (wishing he/she is okay).

 

I've been more cautious with my levels, eating better, drinking more water.

(I stopped having 'energy drinks' after a trip to the hospital were they had irritated my stomach)

 

 

Although, i'm currently feeling really sick. I have a massive cold that started in the morning and was so bad by the night I couldn't breathe.

My local GP was awesome and helped get me some antibiotics and panadol that was safe whilst pregnant and i'm feeling tons better.

 

Okay, after blabbing on about random stuff, lol. Thank you all for you're help. You've made me feel less stressed and helped me become organised. <3

 

 

Just wanted to say the Health Care System here in Australia is great!! I see the diabetes centre every 4 to 6 months and they do a thorough check! This is all free...I can call up anytime if I feel I need assistance in changing my doses.....but having had diabetes for almost 10 years I find I am the best at controlling my sugars, I know my body better and seek their help if I require it or need clarification of what I am doing..........BUT as soon as I became pregnant the care I was given went overboard........the RPA hospital makes me come in every 2 weeks which I think is too much.......but dont mind as the care is there........this is all free by the way, covered by the government (Im here in Sydney). I call whenever I want and they are very very very helpful over the phone and help me if I need adjusting! They are very strict with me which I hated at first but am glad now as they keep me on my feet! Never have I had such good control of my diabetes until pregnant (hba1c 5.9%) and it is only becase they are constantly on my back! I dont care.......look what I have acheived for my baby! so, I must say the Health Care system here in Aus is fantastic and very very supportive and most of all its free......Im having my baby in a public hospital, a very good one that has a series on tv here in Aus - RPA, everyone speaks very highly of the RPA. Really, no matter how much care you get it really is up to the individual to control their own sugars, we know us best, its great to know we can easily reach out by simply dialing a number if we need help! x

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Katrina Stovold

Good on you!! Thats what we like to hear!! You are fantastic! You will be great!!! Do it from now on! Get in control!! Eat the same thing each day (or at least similar carbs each meal) and test alot, write down your readings and note changes.

Aim for good readings....if they arent good, then fix the dose up with the guidance of your diabetic clinic that surely you can ring when you need to......please tell me they are there for you! We are only a state away and Id hate to know that you dont have the same opportunity of good support that we do here in nsw.....cant wait to hear your progres and you can show off your new improved hba1c!! x

 

 

 

 

I'm so glad that the health care system is supporting you!

I will admit when I was in my younger teens, (14-17yrs) I wouldn't visit the hospital appoints, I would refuse to worry, etc.

 

These days I'm more concerned with my health because I want the best for myself, my partner and our child (wishing he/she is okay).

 

I've been more cautious with my levels, eating better, drinking more water.

(I stopped having 'energy drinks' after a trip to the hospital were they had irritated my stomach)

 

 

Although, i'm currently feeling really sick. I have a massive cold that started in the morning and was so bad by the night I couldn't breathe.

My local GP was awesome and helped get me some antibiotics and panadol that was safe whilst pregnant and i'm feeling tons better.

 

Okay, after blabbing on about random stuff, lol. Thank you all for you're help. You've made me feel less stressed and helped me become organised. <3

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Belle'sMama

I know it is MUCH easier said that done, but try and stop worrying and instead start testing like crazy, things will be just fine. How far along are you now? I'm 25 wks along with my second, and although it was planned, my levels were CRAZY high from the point of conception, and I was seeing my endo once a week from the day I tested positive! So, sometimes no matter what you do they are going to be high and sometimes be low, for no reason at all. Pregnancy can cause crazy reactions to insulin, at first you usually need a lot more, then about 8 wks or so you don't need as much, then the need for insulin usually starts to creep back up from that point on until you are full term, when you might find your insulin needs decrease. Sounds crazy, right? yep......it is VERY hard being a pregnant diabetic and it is so much work. I was hoping this time around that I wouldn't be as sick as I was with my last one, but it was even worse, which made my BS go even crazier. I live in the US and have had quite a few ultrasounds and so far everything with my baby looks fine, which is a miracle, just like my 3 yr old. I was the same way with her, same control, and she was perfectly fine. I will tell you, after I had my 3yr old I let my control slack up a little and it was hard to get it back tight, but after a while of testing every two hours, all day long, and meeting with my endo once or twice a week, it's now more so a habit and my A1c is now a 6.4, best yet! I wish I had had better control in the beginning months, but being so sick I had a condition called hyperemesis, and being insulin resistant, it was hard, and hindsight is always 20/20. I hope you can find a better dr or health care team that will better meet your needs, because even with my great health care, it was still very hard for me to get mine under control. At my first visit, I met with a dietician whol told me to test every 2 hrs and check for ketones once in the morning and once before dinner in the evenings. I've dealt with the drs who use scare tactics and HATE them, they do look at your A1C and treat you as noncompliant from the get go if it's high. Plus I must confess that I wasn't compliant as a teen, my biggest regret, but the past is just that, the past and we can only try and be healthy from now on. The best thing I ever did was get on the pump, my A1C was over 10% when I started it and it went down to a 6.0 three months after. I had been on Lantus and Humalog before that and obviously was on the wrong levels, plus had never been taught how to carb count before the pump either. I think if I had known how to carb count, the lantus and humalog would've worked better. Take care and good luck!

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cassandrajade

I woke up feeling groggy and my partner and I made love, and when he pulled out there was blood on the condom.

It's gotten heavier since and i've had increasingly painful cramps.

 

I haven't seen the doctors yet, as there not open until Monday, but i'm sure I lost it.

 

 

 

(There's no smilie on this site that can express how much I've cried in the last 12 hours)

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Katrina Stovold

I am really sorry to hear..........but you will conceive again in no time, now you can go into your next pregnancy feeling alot more confident and happy once that you get your hba1c under control.........it will happen....they do say that poor control results in a higher chance of miscarriage, it was not meant to be this time way around........your bodies way of saying.........Im not ready"get my sugars under control!!".......look forward to hearing your new hba1c and pregnancy news! Stay in touch with all of us! x

 

 

 

 

I woke up feeling groggy and my partner and I made love, and when he pulled out there was blood on the condom.

It's gotten heavier since and i've had increasingly painful cramps.

 

I haven't seen the doctors yet, as there not open until Monday, but i'm sure I lost it.

 

 

 

(There's no smilie on this site that can express how much I've cried in the last 12 hours)

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cassandrajade

My fiancee is trying to keep me thinking there's a chance it's just one of the many other reasons he found but I think I lost it.

Although my breasts are still heavy and larger. I'd like them to indicate whether there planning on getting back to normal size, he he.

 

I'll still go to the doctors on Monday just to see what they think, but i'm pessimistic.

 

 

I am really sorry to hear..........but you will conceive again in no time, now you can go into your next pregnancy feeling alot more confident and happy once that you get your hba1c under control.........it will happen....they do say that poor control results in a higher chance of miscarriage, it was not meant to be this time way around........your bodies way of saying.........Im not ready"get my sugars under control!!".......look forward to hearing your new hba1c and pregnancy news! Stay in touch with all of us! x

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Katrina Stovold

True, it may/may not be related to the diabetes! 1 in 4 pregnancies end in misscarriage and majorityof women go on to have many healthy kids...I had a miscarriage at age 18, I am now 32. I wasnt even a type 1 at age 18 and lost the baby at 6 weeks......so it happens for unknown reasons, then I conceived again at age 32 and went onto a normal pregnancy........if it happens second time around then go to doc and get a full check on your reproductive system....you are lucky you are only 19, you have plenty of time on your side! Allthe very best to you and your partner! x

 

 

My fiancee is trying to keep me thinking there's a chance it's just one of the many other reasons he found but I think I lost it.

Although my breasts are still heavy and larger. I'd like them to indicate whether there planning on getting back to normal size, he he.

 

I'll still go to the doctors on Monday just to see what they think, but i'm pessimistic.

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cassandrajade

Attended the hospital twice.

It was confirmed I lost the pregnancy, but have to go back in a week to check for ectopic pregnancy just in case.

 

 

True, it may/may not be related to the diabetes! 1 in 4 pregnancies end in misscarriage and majorityof women go on to have many healthy kids...I had a miscarriage at age 18, I am now 32. I wasnt even a type 1 at age 18 and lost the baby at 6 weeks......so it happens for unknown reasons, then I conceived again at age 32 and went onto a normal pregnancy........if it happens second time around then go to doc and get a full check on your reproductive system....you are lucky you are only 19, you have plenty of time on your side! Allthe very best to you and your partner! x

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cassandrajade

thank you for you're kindness. :o

 

I'm very sorry to hear it Cassandra. Take care of yourself and your partner.

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rak1978

Cassandra, I am so sorry! I can't even imagine how difficult this must be. You and your fiance will be in my prayers! Take care and I hope to see you around here often.

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pinkbenjiblue

Hello Cassandra, So I was on your page b 4 and noticed on the bottom that u had lost your sweet pea....I was hopeful that I was mistaken...I am so sorry for your loss and only wish u good things....Please take care of yourself and again you and your Family will be in our thoughts and prayers......

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mell1682

I am so sorry for your loss Cassandra. I know you're in a world of pain :( I just wanted to send lots of hugs your way and say please don't blame yourself...it's all too easy to when you have diabetes. I still struggle with it after losing my baby last year, my A1C was 9.5 and the docs blamed that. Miscarriages happen to NON diabetics too. I'm so sorry, you are in my prayers

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e||ement

i'm so sorry for your loss.

 

please don't blame yourself though. miscarriages are common...even in women without diabetes.

 

my first pregnancy ended in miscarriage and i was not diabetic then.

 

i hope you can find peace in your loss, and know that even though we sometimes can't make sense of tragedies, everything happens for a reason.

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