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Jerseymomma

New to this all..need to vent. Thanks

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Jerseymomma

Ok. This is all new to me, so I apologize now if it sounds like I am whining. Just a quick little background on my DS. He is a sweet and loving 6 year old. He has food allergies to many, many foods including eggs, peanuts, treenuts, all dairy/milk, soy, sesame, carrots, peas.... He has mild asthma and eczema-which can be severe when exposed to allergens.

 

He recently starting getting numbness in his hands and feet...on and off. My pediatrician did blood work and saw that his sugars were a little elevated. 118 fasting. A retake was 125. He got in touch with an endocrinologist who also ordered other bw. c-peptides are a little low at 6.3. The normal range was 6.5-? Antibodies test was inconclusive because the lab messed up. We are currently waiting for more results. A1c was 6.4. So at this point the doctor believes that he has diabetes but it was caught really early. No meds right now, just monitoring. I have gotten fastings at home from 115-145. 2 hours after meals from 120-180.

 

In the meanwhile, he is still having numbness episodes. Not related to diabetes, I am told, because sugars are not that bad. We are seeing a neurologist who did a video EEG at the hospital for 4 days. They just diagnosed him with a form of childhood epilepsy too. He is on meds for that now, but they highly doubt that seizures are causing this numbness. (It is not common for this type of epilepsy).

 

So now onto a neurosurgeon to rule out need for surgery. They found an abnormality on an MRI they did. But this too, most likely not causing episodes. More testing to do...MRA, nerve testing, Cerbral spinal fluid test...

 

We are going to see a holistic doctor Friday and I am speaking with a psychic tomorrow. Yes, it sounds hokey, but I am willing to try anything at this point.

 

And all of this since the beginning of January. If you would see my boy, he is a healthy and bright boy. This kills me to put him through so many tests.

 

All I want to know is if he is okay and what is causing his episodes. Every time they do another test, they are finding something else "wrong". And now the diagnosis of "Diabetes-probably type 1, maybe MODY"

 

Thanks for letting me vent.

 

Karen

Mom to 3 great kids ages 9, 6 and 3

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Delphinus

Nothing is hokey when it comes to our children.

 

I really don't have much to offer about the numbness. It sounds like neuropathy but with numbess it can be many other things as well.

 

Have you tried massaging his numb areas or getting him to, to see if there is any relief?

 

Anything regarding kids can be scary. Keep us posted.

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Jan B

Karen,

 

I'd be venting too. Kids are so resillient and don't complain as much as adults do, which is both good and bad. Believe me, I know how much a child's health problems hurt parents. I had a son with severe heart defects.

 

I wish I could offer something useful, but it looks like you already have everything covered. The numbness does sound like neuropathy, but like Jason said, it could be other things. It's possible the elevated blood sugar levels are the result of the other problems, and not diabetes, but I don't know how likely. I'm sending you and your sweet 6-year old big hugs. I hope you'll follow up and let us know some test results . . . and keep venting all you'd like.

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safira218
Nothing is hokey when it comes to our children.

 

I really don't have much to offer about the numbness. It sounds like neuropathy but with numbess it can be many other things as well.

 

Have you tried massaging his numb areas or getting him to, to see if there is any relief?

 

Anything regarding kids can be scary. Keep us posted.

 

I'd be venting too. Kids are so resillient and don't complain as much as adults do, which is both good and bad. Believe me, I know how much a child's health problems hurt parents. I had a son with severe heart defects.

 

 

 

 

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silK

If you are open to it, may I recommend the book "The PH Miracle for Diabetes" by Robert O. Young? When my daughter was diagnosed with Type 1, I read practically EVERY "conventional" and "natural" book on diabetes - doing extensive research on every possible remedy on the face of the earth (yeah, I spent hundreds on Amazon, and hours at the library and online). IMHO, this particular book is one of the most useful. And it is beneficial not just for diabetics (excellent read for anyone with a health issue). I highly recommend you read this for your son.

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momto2j's

I don't know where you live, but I highly recommend that you consider having your son seen at the Mayo clinic. It sound like he has a complex case and they are the best in the world at coordinating specialists and having them work together for find a Dx and putting together a plan for your local doctors. I know the travel is expensive but it is the place to be when you don't really know what is wrong. Good luck!!

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jeepers

Hi Karen -

I don't have any advice as we are new at this too...hugs your way. Hang in there. R u in Jersey - which holistic are you seeing? In NNJ Doctor Ali (Denville) is very good, but very difficult to get appointments with. He deals with diet, allergies, etc I know a couple of people have seen him for allergies and ADD with great results. He is an integrative medicine doc with a medical pathology background and deals with the 'whole body' picture.

D.

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