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ShellsBells

Don't quite believeit

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ShellsBells

Hi there x

 

Me and the OH are waiting for my period to arrive so we can start with the IVF process as we've been ntnp for a couple of years now. In light of this I started taking folic acid at the start of this week, and have tamed my sugar levels, which are normally from high to low to high to low.

 

I've been waiting and waiting for the 1st day of my period so i could ring the hospital about IVF, but today (6 days late) I gave in and bought a pregnancy test. It came up positive :D ...I did another and that said the same and I have 3 more to try in the morning lol xx

 

I'm soooo worried that my high sugar levels so early on in the pregnancy (if that's what this is) might have caused some damage. My last HbA1c was awful (9ish) butit was 6.2 before that, so i'm trying to get it there again.

 

I know no one will say its ok the baby will be fine, but any opinions or experience would be appreciated. I have no clue what to do now except maybe call the docs tomorrow?

 

BTW I am 31, been T1 for 14 years and take multiple Fast Acting with Lantus.

 

Off to read some more of these lovely threads

Shelley x

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kmcd23

I'm not far enough along in this journey to offer advice or assurance (almost 14 weeks), but I wanted to say CONGRATULATIONS! I can totally relate to your experience. We were told I was infertile, and our doctor strongly discouraged us from having IVF, etc. because I could never seem to get my A1C below 6 - his threshold for treatments. But then, surprise! It happened naturally when I least expected it. It's an amazing and terrifying experience, and I wish you the best of luck! <3

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ShellsBells
I'm not far enough along in this journey to offer advice or assurance (almost 14 weeks), but I wanted to say CONGRATULATIONS! I can totally relate to your experience. We were told I was infertile, and our doctor strongly discouraged us from having IVF, etc. because I could never seem to get my A1C below 6 - his threshold for treatments. But then, surprise! It happened naturally when I least expected it. It's an amazing and terrifying experience, and I wish you the best of luck! <3

 

Thanks xx

My boss was telling me just yesterday of 3 stories, including her own, where after years of trying it just happened.

 

I got my sugars to 6.2 last year and my nurse told me it was too low!! even when she knew we were ttc! Hence me losing faith and control. its al coming back to me now, very quickly i might add xxxx

 

I hope your pregnancy is going well hun xx

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jbmacomber

Well no advice , but CONGRATULATIONS!!!!!!! With trying 4 years for first and 15 years before second, know the joy you are feeling is just awesome!!!!

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Kathryn10

Congratulations!!! That's awesome news. I was terrified when I found out I was pregnant and my bgs weren't in fantastic control. Stress is bad for the baby, so just do the best you can and you should be fine. I went to a high-risk office during my pregnancy and the doctors there tried to reassure me by telling me that they had many patients with very high a1cs and had babies with no issues. That made me feel better, but it also made me work as hard as possible to keep my numbers under control.

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Kate VT

Hi Kathryn, when you say high a1cs, what numbers are you talking about? i was looking for info on type 1 diabetics and pregnancy due to being totally petrified after my doctor telling me all of the complications that are possible, i just found this website when looking for info on type 1 diabetics and pregnancy. we are not actively "trying" but we are not "not trying", my last a1c was 7.3..any info would be much appreciated!!!

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sugarmama13

Congratulations! I just took a positive pregnancy test Monday, and my A1c was also much less than desirable last I knew. Looks like we might be in this together. :) Good luck!

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Kathryn10
Hi Kathryn, when you say high a1cs, what numbers are you talking about? i was looking for info on type 1 diabetics and pregnancy due to being totally petrified after my doctor telling me all of the complications that are possible, i just found this website when looking for info on type 1 diabetics and pregnancy. we are not actively "trying" but we are not "not trying", my last a1c was 7.3..any info would be much appreciated!!!

 

Hi Kate,

The doctors at my clinic said they had women whose a1cs were in the 10-13 range!! I would never want to try going that high, but it made me feel a bit better. I remember reading about type 1 diabetes and pregnancy online when I found out that I was pregnant and I was absolutely mortified after reading what I could find. Next time around, I'm going to be as relaxed as possible, not google anything related to diabetes and pregnancy, and just take care of my bgs the best I could. If you have any further questions let me know!

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ShellsBells
Congratulations! I just took a positive pregnancy test Monday, and my A1c was also much less than desirable last I knew. Looks like we might be in this together. :) Good luck!

Thanks, I have now done 5 tests and still dont believe it, but i have an appointment at the hospital on thursday to see my diabetic nurse, the specialist diabetic midwife and a specialist doctor, so that should be very informative... I will report back when I've absorbed everything they tell me xx

 

Well no advice , but CONGRATULATIONS!!!!!!! With trying 4 years for first and 15 years before second, know the joy you are feeling is just awesome!!!!

Indeed it is :) xx

 

Congratulations!!! That's awesome news. I was terrified when I found out I was pregnant and my bgs weren't in fantastic control. Stress is bad for the baby, so just do the best you can and you should be fine. I went to a high-risk office during my pregnancy and the doctors there tried to reassure me by telling me that they had many patients with very high a1cs and had babies with no issues. That made me feel better, but it also made me work as hard as possible to keep my numbers under control.

 

My sugars have been very good since thurdsay when i took the first test but today i'm having trouble and they are 12.4mmol (225mg) right now, so ive just had a huge dose of humalog and will treat the hypo when it happens. My own stupid fault as I was a bit overconfident when eating that second cookie. No more cookies now, not worth the risk xxx

 

Hi Kate,

The doctors at my clinic said they had women whose a1cs were in the 10-13 range!! I would never want to try going that high, but it made me feel a bit better. I remember reading about type 1 diabetes and pregnancy online when I found out that I was pregnant and I was absolutely mortified after reading what I could find. Next time around, I'm going to be as relaxed as possible, not google anything related to diabetes and pregnancy, and just take care of my bgs the best I could. If you have any further questions let me know!

 

I read far too much ha!!

 

I don't suppose anyone knows what implications low blood sugars have on a baby are? I know all about highs, so would be more than happy to risk daily hypos to prevent high bs, but could this do any damage?xx

 

Thanks for all your lovely messages xx

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ShellsBells

Oh dear... gained 9lbs this week!

 

I know your meant to gain weight in pregnancy but not this much so soon.

 

I know it's down to trying too hard to keep my sugars in check. They keep going below target after I take too much humalog to be sure they won't go over target. So a cookie, biscuit, jam on (white) toast, bag of crisps (chips lol) 7 or 8 times a day is not a plan for the next 9 months !!!

 

Help xxx

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Kathryn10

In the first trimester my bgs ran so low that it was impossible not to eat everything in sight. It was so frustrating! Reduce your basal rate and you should be ok. Then the 2nd trimester will come and it will get a bit easier.

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ShellsBells
In the first trimester my bgs ran so low that it was impossible not to eat everything in sight. It was so frustrating! Reduce your basal rate and you should be ok. Then the 2nd trimester will come and it will get a bit easier.

 

Thankyou!!

What you have just said sounds so simple, I just can't seem to see the wood for the trees right now.

I will reduce my morning basal tomorrow by a couple of units and then keep tinkering with it.

 

Thanks so much xxx

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aiah23

I had a lot of low blood sugars in my first trimester. It doesn't seem to hurt the baby but it sure makes it harder to function and the multiple lows really wipe you out. There's also the risk of losing consciousness and if you're deprived of oxygen too long (from said loss of consciousness), then the baby could be damaged at that point. It takes a lot of work, but it is totally and completely worth it! CONGRATULATIONS!!!!!!!!!!!!!!!!!!

 

Fawn

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ShellsBells

Thank you xxx

 

Just popped on here while my eyes are open lol x struggling to stay awake! Definitely be back on with an update on Thursday after my 1st hospital appointment :) x

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ShellsBells

Blood sugar went low on the walk home. I vaguely remember falling in the street. When I got home to my empty house I couldn't get the key in the door and collapsed on the floor :(

Think I was there about half an hour or so and something's telling me someone tried to help but didnt get very far.

Out of nowhere I had a spurt of energy and got into the house. My blood sugar was 'LO' which on my meter is below 1.1mmol I think?

I located my coke but remember feeling like my world was going to end there and then, took me 2.5hrs to come round, so glad I'm at the hospital tomorrow!!

 

Sights are now 13.4 which is the highest since my BFP. And to get them down I've taken loads of insulin... its a viscous circle :-(

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aiah23
Blood sugar went low on the walk home. I vaguely remember falling in the street. When I got home to my empty house I couldn't get the key in the door and collapsed on the floor :(

Think I was there about half an hour or so and something's telling me someone tried to help but didnt get very far.

Out of nowhere I had a spurt of energy and got into the house. My blood sugar was 'LO' which on my meter is below 1.1mmol I think?

I located my coke but remember feeling like my world was going to end there and then, took me 2.5hrs to come round, so glad I'm at the hospital tomorrow!!

 

Sights are now 13.4 which is the highest since my BFP. And to get them down I've taken loads of insulin... its a viscous circle :-(

 

That happened to me when I went to bed....DH checked my blood sugar and my meter said 12 which is the lowest reading I've ever had. awful. I felt like **** the rest of the night and next day but I had an emotional high since I'd confirmed I was pregnant...

 

Fawn

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Krista244

Hi Shelley, I just found out yesterday that I am 6 weeks pregnant. I took 3 pregnancy tests and all said "positive". I am 41 years old, have type 1 diabetes since I was 5 years old. I honestly thought I could not get pregnant. I told my OBGYN doctor my A1C was 7.9 on my last check - that was about 3 to 4 weeks ago. He said that was fine - he would rather it be that then over 10. He's sending me to a Endo that works with Type 1 Diabetics and pregnancy - he said the Endo will show me how to use my pump to get my bloodsugars under tight control. I told him I was very grateful because this may be my only chance to have a baby due to the high-risk and my age. I had a friend of mine send me a great book from Amazon called Balancing Pregnancy with Pre-Existing Diabetes: Healthy Mom, Healthy Baby by Cheryl Alkon. It is a great book and full of information. As a matter of fact I read the book before going to the OBGYN (my first appt was yesterday - wouldn't see me until the 7th week - I thought I was further along than I am) - but the book talked about the type of ultrasound to expect on the first visit and I told my sister it would be vaginal - she said "no it won't, it will be on your stomach" - well, I was right and it was because of all the information I got from that book. The author is a diabetic as well but there are many other women interviewed in the book with some great information. Check it out!

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ShellsBells

Congratulations Krista xxx I hope all goes well and I'm sure everyone will look after you

 

I had my 1st appointment where they did an ultrasound on my tummy but I'm in the UK so ot might be different for you? I saw a little black dot in my womb though which was lovely.

 

I was there for 3 hours where I saw a doctor, a dietitian, a nurse, a midwife and another doctor lol! They have decided to put me on a pump but may not be able to get one for a couple of weeks. In the meantime I've been told to loosen my control (of all things?) But I think this is to prevent hypo and stabilise my sugars ready for my pump. We currently have no idea what my correct basal dose would be and I know that's important. Annoyed though as my sugars have been high high high :( they are leveling off though so fingers crossed!!

 

I have my next scan 2 days after Christmas and I'm back in with my specialist nurse (who knows me well luckily) next Thursday. I hope she has a pump for me xxx

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Kate VT

I wish i read this post earlier Kathryn, thank you soooo much! I work at a hospital, so it is very hard not to google things like that:) How long were you pregnant before you found out? I am assuming everything went well??? I have a good friend who is an ER doctor, and she advised me a while back to take pre-natals as my "regular" vitamins, during my "child bearing years", just in case, to reduce the chances of things like neural cord defects etc. I have read that some doctors want blood sugars for type 1s that are pregnant slightly higher than what we typically shoot for, because lows are so common especially in the first trimester, have you heard similar? Thanks again:)

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ShellsBells

Congratulations Krista xxx I hope all goes well and I'm sure everyone will look after you

 

I had my 1st appointment where they did an ultrasound on my tummy but I'm in the UK so ot might be different for you? I saw a little black dot in my womb though which was lovely.

 

I was there for 3 hours where I saw a doctor, a dietitian, a nurse, a midwife and another doctor lol! They have decided to put me on a pump but may not be able to get one for a couple of weeks. In the meantime I've been told to loosen my control (of all things?) But I think this is to prevent hypo and stabilise my sugars ready for my pump. We currently have no idea what my correct basal dose would be and I know that's important. Annoyed though as my sugars have been high high high :( they are leveling off though so fingers crossed!!

 

I have my next scan 2 days after Christmas and I'm back in with my specialist nurse (who knows me well luckily) next Thursday. I hope she has a pump for me xxx

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ShellsBells

Not sure why my last post is on here twice but anyhoo...

 

My HbA1c came back at 7.6m which wasn't as disaterous as i thought!

I have a new blood sugar meter which is very fancy and I'm very excited about my pump which is on order woth the NHS xxx

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Kathryn10
I wish i read this post earlier Kathryn, thank you soooo much! I work at a hospital, so it is very hard not to google things like that:) How long were you pregnant before you found out? I am assuming everything went well??? I have a good friend who is an ER doctor, and she advised me a while back to take pre-natals as my "regular" vitamins, during my "child bearing years", just in case, to reduce the chances of things like neural cord defects etc. I have read that some doctors want blood sugars for type 1s that are pregnant slightly higher than what we typically shoot for, because lows are so common especially in the first trimester, have you heard similar? Thanks again:)

 

Hi Kate,

I was pregnant for 8 weeks before I found out ... it was a complete surprise lol. Yes, I have a perfectly healthy 5 year old daughter now. Most of my doctors recommended that I keep my blood sugars lower than normal, but to still diligently try to avoid lows too. It's difficult but definitely worth it in the end.

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-Lee-B

Congrats! I am now 22 weeks. My A1c's have been in the 7's getting a tad lower each time. As much as it iss extremely important to keep the numbers down try not to focus on them too much. Take each number as they come and do your best. Test often and correct quickly. A couple high suagrs here and there will liekly not harm the baby, as long as you bring them down quickly.

 

Beware of the lows, do not leave the house without fast sugar in your pocket as I found my sense of where my suagrs are is completely messed up. I used to be able to tell highs and lows very quickly now I feel backwards! If you start to feel really off, down some sugar then test. If you turned out not to be low take insulin. This way you got the sugar in if you do collapse. I swear I have a good 100-200 carbs with me at all times...I've had times where I've needed over 100carbs just to remain functional for no reason what so ever. The pregnant body is a wonky thing!!!! Test often, especially if you can't feel the lows. I was testing 20plus times for the first few months. I'm am now comfortably down to about 13-15 tests a day on a good day!!!

 

I am being followed by the high-risk team at hospital. I go every 1-2 weeks and see 4-8 people each visit. It takes hours and I still, after months, have no clue half their names lol. But while everything is going perfectly so far I know that if things go off the rails they will be able to help quickly. They are not alarmed by my A1C's in the 7's and they do not lecture me for off days. Their motto is not to blame but to try and fix/prevent. I call my nurse every 1-2 days and email all logs and we change insulins almost daily. I am on a pump and still don't go more than a couple days without having to change things. My insulin needs go up down up down like crazy!!!

 

Happily we just had our 21 week scan, a level 2 ultrasound (more detailed than normal one, with specialists reading it) and baby looks perfect. Great size, no abnormalities what so ever. That was a great reassurance. I know it's never 100% but this level 2 machine supposedly has a 80% rate of seeing anything wrong so that is a huge reassurance. I work my butt off to get controlled but despite everything have my off days and hours but so far so good.

 

Stay positive, do your best and seek help as needed. Don't fret about the blimps in the road there will likely be many! Don't self blame, even with perfect control baby may have difficulties for some, and for others with very poor control baby comes out perfectly fine. Just try your best!

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ShellsBells

Stay positive, do your best and seek help as needed. Don't fret about the blimps in the road there will likely be many! Don't self blame, even with perfect control baby may have difficulties for some, and for others with very poor control baby comes out perfectly fine. Just try your best!

 

What a great read x thanks for your comments and your thoughts, and your good news!!

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