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BeckieLynn55

Ace Inhibitors (Lisinopril)

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BeckieLynn55

So, I just found out that I was pregnant 2 days ago and wow.. it's exciting and scary!

 

I was previously spilling proteins, so I was put on Lisinopril to protect my kidneys. I've been using Lisinopril for the last 2 years, now. (10mg/day). However, I have ceased this in the last couple days after reading that this should absolutely be ceased in pregnancy (FYI: We weren't necessarily planning pregnancy yet, so this is last minute research!)

 

So, although I have searched around and saw that all Ace Inhibitors should be ceased during pregnancy, I haven't seen anything about how this will affect my kidneys and if there is anything else that I'm going to be able to do to help protect my kidneys during the next 8 months! Has anyone else had to stop using an Ace Inhibitor during pregnancy and is there anything else that they had done to protect their kidneys in the mean time?

 

Thank you for any help you can offer!

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GretchO

Have you talked to your Endo/OBGYN/Nephrologist about this (whoever prescribed the Lisinopril)? If you're taking BP meds to control BP they usually switch you to a beta blocker (like Labetalol) or a calcium channel blocker (like Nifedipine) which are OK to take during pregnancy. Was the issue with your kidneys related to elevated BP at all?

 

At a minimum I'd talk to your Endo and/or OBGYN, or whoever prescribed the Lisinopril and discuss the pregnancy and what they want to switch you to.

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jwags

I would call your OB or your Endo. During pregnancy they definitely want your BP in a good range. I am on 5 mg of Lisnopril but was not on it while pregnant.

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BeckieLynn55
I would call your OB or your Endo. During pregnancy they definitely want your BP in a good range. I am on 5 mg of Lisnopril but was not on it while pregnant.

 

The Lisinopril us not for my BP. My BP is actually low, so I'm definitely not taking it to lower it! Lisinopril can also be prescribed just to protect your kidneys. I was spilling proteins before I started to take it and now Im good after going up to 10mg. I have a doc appointment in 2 weeks and she's already directed me to stop taking it and didn't give further directions. ( a nurse called me back but she said that she didnt know and just wait til I come in in 2 weeks!) I dont think there is anything else that I will be able to take for this purpose.

 

So, I guess my real question might be, how much damage is this going to do to me in 9 months?! Has anyone else been in this situation? (Sorry, Im impatient and google wasn't helping! )

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Seagal

You could check the DaVita.com site and see if they have recommendations, but I'm thinking this is a question for those with a medical degree. Evidently your dr. didn't see much of an urgency to replace the lisinopril or she would have prescribed a more suitable med.

 

BTW, congratulations:)

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PinkRose

If you've had some protein spilling in the past & you're now pregnant, it would probably be a good idea to see a Nephrologist during your pregnancy for extra peace of mind. Pregnancy is a time of a lot of changes within the body and can impact a diabetic woman's eyes and kidneys. Taking an ACE inhibitor is not advisable during pregnancy because safety in pregnancy has not been established.

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blufloyd

Nasty drug get thee far away... Made me feel lost and confused and I have noticed some people acting odd that later turned out were on it too. Sad sad sad.

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TrickyTreeFrog
Nasty drug get thee far away... Made me feel lost and confused and I have noticed some people acting odd that later turned out were on it too. Sad sad sad.

 

Very very very true blu.....my hubby was on that and suffered 38 days of h*ll until I made him stop taking it. Doc told him since he was now a T2 he wanted this to be a preventative thing....yea right....left inner ear pain and left side of head everyday that would bring him to his knees and twice to ER he could not stand the pain. I know of 4 others that after I told them about the lost and confused feeling or pain in legs..head...ear....jaw...cough that does not go away ...they stopped it and what do you know they ALL got better.

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KelliMax

First congrats your pregnant! I am recently too! I have had a lot of questions for my doctors as well because I am waiting for that first appointment. Don't be afraid to be annoying. If you are not finding the info you want online keep calling them until you are comfortable with what they tell you, sometimes they have a nurse hotline/help sort of thing at different diabetes centers. I had to tell my doctor that I was not comfortable waiting 3 weeks to see them, and I was just scared to be type 1 and pregnant, so they got me in on Monday. Good luck!

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BeckieLynn55
Don't be afraid to be annoying. If you are not finding the info you want online keep calling them until you are comfortable with what they tell you, sometimes they have a nurse hotline/help sort of thing at different diabetes centers.

 

Thank you, Kelli! I have my first appointment tomorrow morning (FINALLY) and I've lined up the questions. I've also read in the "Pre Exisiting Diabetes and Pregnancy" book that I will likely need to start seeing a kidney specialist because I was on Lisinopril. That will likely be my first question and I'll push to see that doctor immediately!

 

I'm sorry that some of you (above) had issues with Lisinopril. I think it's different for all of us. The doctors kept checking on me when I started it (literally multiple times per week for the first month) but it hasn't harmed me one bit and really improved my kidney function.

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PinkRose

 

I'm sorry that some of you (above) had issues with Lisinopril. I think it's different for all of us. The doctors kept checking on me when I started it (literally multiple times per week for the first month) but it hasn't harmed me one bit and really improved my kidney function.

 

That part is interesting because when I was started on an ACE inhibitor I wasn't being checked like this at the start. I wonder why you doctor was so cautious about starting you on Lisinopril? Makes me think that maybe my doc wasn't as vigilant as he should have been. In any case, my eGFR did drop a little after starting my ACE but my Neph said that is to be expected & is not considered dangerous. Did your eGFR improve after you started this med?

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BeckieLynn55
Did your eGFR improve after you started this med?

 

I thought it had really improved because of Lisinopril. I was on 5mg but it wasn't good enough so they put me in 10mg and it seemed to do the trick. HOWEVER, I haven't taken Lisinopril now for 4 weeks and I was just retested and everything looked good even without the medication... so I don't know what to say!

 

Fyi: if anyone is reading this because they have to go off Lisinopril and want to know what their options are, there is no other medication. I was told this at my appointment But they wanted to test me without Lisinopril in my system to see where I was before referring me to a kidney specialist. For some lucky reason, I look fine and therefore I don't know what outcome I would have if it didn't come out fine.

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