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gli101

So confused & needing non Dr help!

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gli101

I became diabetic after having a surgery in type. Coded on OR table & later found out was given dextrose instead of saline. That is beside point now. I have been in metformin 1000mg twice day (moved dose up over years) Humlin R on slide scale & various long term insulin. Humlin N, Novolog & now Lantus. Lantus was stepped up 5 units a week till morning BG was under 200. I am taking 45 Lantus most days. However if not eating as much (illness or such) I reduce it. A1C was 13 back in 2009 and got it to 7 last year but felt very bad. Then do to severe neuropathy In my feet, I can't feel anything even a needle 1.5 inches deep, I started having amputations. I have had 12 surgeries on feet & back since then. My pain levels are thru roof. I take morphine XR twice day & endocet every 4 hours. Regular Dr sent me to a metabolic specialist this week.

A1C is 8.3 this week. When Dr drew c peptide BG was 221 & it was 2.8. However they only had me do a 4 hour fast! I made big mistake as when got to his office a little old lady was passing out hard candies. I forgot about not eating and took two!

My regular BG is between 150 and 200. That is where I feel good. Over two start having problems but many times times year I have spells where it goes up to "hi" on meter. While at the Dr one day it showed hi & he called ambulance to take to hospital. I said I would just drive over the 4 blocks since I drive the 34 miles to get to his office but he wouldn't allow it. It took hospital 3 days to get it down.

I can deal with levels at home up to the 500s but then vision goes.

New Dr wants to put me on the new style artificial pancreas (cgm & pump) be marked me as type 1 on all forms even what he is billing my insurance. But the nutritionist That filled out forms to get 530g put down type 2!

Any ideals or help would be appreciated.

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jwags

The only real way to know if you are a type 1 is to have a GAD 65 test to see if you are positive for antibodies. Many type 2's use insulin but they are still type 2's. Many DF members use insulin pumps and do very well. You still have to work to program it to deliver certain amounts of insulin.

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NoraWI

It makes no difference now whether you are T1 or T2. The issue is that you are not controlling your diabetes. Your feel good level between 150 and 200 is way above the level where you get complications, as you found out with your amputations. You have to learn how to gain control through appropriate use of insulin, diet and exercise to get your blood glucose levels as close to non-diabetic as possible. Otherwise, you will continue to have worse and worse complications and you know what those are.

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JanetP

I don't understand how being given dextrose instead of saline would have caused your diabetes.  I rather think it brought to light something that was already there.

 

 And you  waaaay out of control.  There is lots of good advice on regaining control on this forum. 

 

Good luck and welcome.  Feel free to ask any questions you may have.

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jwags

I agree with Janet, giving you dextrose did not make you diabetic. If you weren't diabetic then your bgs would have been stable with the dextrose. Now any surgery or infection can cause temporary high bgs. What was the surgery for? If it had to do with your pancreas, then maybe that could have led to your diabetes . Since your pancreas still puts out insulin, you are probably a type 2.

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BlueSky

Having a pump may be the best way to go, if you can get one funded by insurance. The endo probably put you down as T1 to increase your chances. But it sounds like you are in fact T2.

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NoraWI

Going on a pump for someone whose diabetes is so totally out of control is NOT a solution because pump programming is parallel to MDI in control. Sadly, if one isn't working, then the other will definitely fail as well. The need here is diabetes education, a thorough understanding of how the body works and where its failure can be corrected and supplemented artificially.

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