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Crankcannon

Nerve damage in my skin from my core to my feet. Looking for anyone who can relate.

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Crankcannon

So the topic says it, at the age of 19 years old i began to experience pain in my skin. The pain began in my scrotum skin and taint, over the years radiating down my legs to my feet and up my groin to just below my chest. The feeling is hard to describe, ive learned to deal with the pain for the most part but i still feel it all day and no medication helps, running my hand along my leg hair feels like every hair is being ripped out with sand paper. When i clean shave my leg hair and stomach the pain is gone for about 1 day, as soon as the hair grows above the skin the pain returns, the skin on my core also feels as hot as a furnace, a side effect of overactive nerves possibly. This problem has made it almost impossible to wear cloths, especially pants of any kind. I am really hoping i can find anybody that can relate to my problem or come forward with a possible answer because no doctor in these past 5 years living with this have been able to give me anything other than neuropathy, but i am not completely convinced that that is the problem. This is beginning to get harder and harder to live with, physically my body can take it, but mentally im breaking down and the light at the end of the tunnel im hoping for is starting to fade..

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NoraWI

Have you tried a low carb diet? It takes a while to be effective but eventually does wonders for neuropathy. How are your numbers? A1c? What is your diet like right now?

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predb4

i am sorry to hear that. have a frank discussionwith the doctor and say that you want to consider alternatives to the neuropathy hypothesis and seek other diagnosis.  you would be doing that for other diabetics too.

 

you might also  want to consider a change in wardrobe and consider wearing thai fish pants or some of those east indian loose-fitting pants like dhoti or patiala, and get a couple of tops to match it. you tube has planty videos on how to make them or you can buy them online.

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jwags

Have you gone to a dermatologist? iIt does sound like you may be allergic to a lot of things in the environment. I know I need to be careful with laundry detergents that have any fragrance or chemicals in them.

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TX_Clint

This doesn't sound like neuropathy symptoms to me. Have you looked into other possibilities. One possible is Allodynia which I found with a simple search. Allodynia is a heightened sensitivity to touch, which results in pain from things that normally would not cause discomfort. Allodynia is also related to a lack of restorative sleep, so standard treatments for fibromyalgia — such as physical therapy, exercise, stress relief techniques, and practicing good sleep hygiene — can also help ease allodynia. I hope you can get some help as this sounds awful to deal with.

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kooka

Have you had these tests? They have to be ordered by and doctor and you go to a specialist to get them. I had mine a few short months ago  and that is how they determined the extent of my neuropathy.

 

*Electromyography (EMG) is a test that measures the function of the nerves. For this test a very thin needle is inserted through the skin into the muscle. The needle contains an electrode that measures the electrical activity of the muscle. (this hurts somewhat in muscles not are not yet affected with neuropathy but all in all it is not to painful.)

*A nerve conduction velocity test (NCV) measures the speed at which signals travel through the nerves. This test is often done with the EMG. In the NCV test, patches containing surface electrodes are placed on the skin over nerves at various locations. Each patch gives off a very mild electrical impulse, which stimulates the nerve. The electrical activity of the nerves is measured and the speed of the electrical impulses between electrodes (reflecting the speed of the nerve signals) is calculated. (There is some pain with this if it hits a bone on the hip or ankle otherwise not to bad.)

 

I also just returned from my diabetic foot exam and he explained the hot/ frozen thing that goes on with my feet. He said my feet are not actually hot but the nerves send the wrong signals to the brain telling the brain my feet are on fire or frozen.  Perhaps you need to see a Neurologist.

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dowling gram

I am trying to find out about the burning pain in my upper thigh and hip that comes and goes and is irritated by stiffer clothes like jeans so I've been researching this subject and wearing a lot of fleece. So far they have ruled out bursitis and iliotibial band problems and joint problems (which I knew it wasn't)

 

My pain comes with a light touch not deep pressure so I knew it had something to do with nerves or muscles not bone. My doctor is sending me to a joint clinic where I hope they will give me a cortizone shot.I think what I have is meralgia paresthetica This is an inflamation of the lateral femoral cutaneous nerve.

 

Tylenol or ibuprophen does nothing for this pain so I was using a topical pain killer Voltarin Emulgel. On my last doctors visit she gave me a prescription for a  stronger version of it to use until my appointment at the joint clinic--Diclofenac 5% in Diffusimax and that really helps.

 

You can read about meralgia paresthetica on the mayo clinic website here--

 

http://www.mayoclinic.org/diseases-conditions/meralgia-paresthetica/basics/symptoms/con-20030852

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Crankcannon

Thank you for the replys, i have had 2 EMGS and both came back as having poor nerve responses but the neurologist said that it wasnt bad enough that it should be causing this level of problems. Also when this started my A1C was above 12, currently down to 7.8, @TX_Clint, your suggestion sounds exactly like what im feeling. especially since this happened ive had problems with sleep, usually staying up until the point at which i can no longer stay awake. Also ive been working on eating high amounts of protein and veggies with almost no carbs in the diet, i know reversing this problem will take time so i just need to keep being optomistic that it will infact reverse with time and effort. Thank you again for all of your responses, i will take all of these possibilitys into consideration.

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kooka

That is the same thing the EMG doctor told me but my Orthopedic surgeon said otherwise. He is treating me for neuropathy and so far the thing that has helped the most is consistently keeping my daily carb count to 15 grams or under. I hope you find a solution soon Crank.

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jerburke

I would definitely see a neurologist.

I get a bad burning in my face. It's worse when I touch my face, but it's bad even without touching.

I'm currently taking Gabapentin. It helps but the burning is not 100% gone.

 

I had Shingles a few years back. That was possibly the worst pain I've ever experienced!!

My skin pain was so bad that the clothes I was wearing would hurt like crazy. Even just air from a fan blowing against my skin hurt like crazy!

 

I hope you find the proper help.

 

-Jeremy

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