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lj1000

has anyone had macular edema in pregnancy

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lj1000

Hi

I'm 30 years old and 23 weeks pregnant with my first child which wasn't planned. My blood glucose has been well controlled during pregnancy. Before pregnancy it wasn't well controlled. I have never had eye problems until now and all test results are good no high cholestrol, protein, no glucose in urine, and good 3 month avarages. Baby is developing healthy and to gastation age.

What I was wondering was if anyone has suffered with macular edema during pregnancy?

At 19 weeks I developed macular edema in my left eye this has slowly progressed worse even after having laser treatment to stop progression. At 20 weeks I developed macular edema in the right eye but not as bad as the left and at one point it recessed but came back within days. I have chosen to not treat the right eye yet as the left vision got worse after treatment. I havnt been told anything solid by the hospital on what recovery I might have of my vision after i give birth and everything i have been told has been scary and upsetting. It's causing me huge distress as my sight is now so bad I can't see people's faces the tv etc. Iv been suffering with depression from this and at the moment considering putting my baby up for adoption when she arrives as I wouldn't be a good mum without my sight and want to do what's best for her, this is one of the most difficult time of my life and it breaks my heart that i may not be able to look after her. I have read medical journal after medical journal on macular edema during pregnancy but would really like to hear from people who have experienced this. Did it resolve after giving birth? Did you loose vision? Any information would help. I'm at my wits end.

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jwags

I can't specifically answer your question about pregnancy but I was dx'd with Retinopathy and macular edema a few months ago. My bgs have been well controlled for 8 1/2 years. My eye doctor felt high bgs before I was dx'd did the initial damage. He just told me when it gets bad enough they will do injections to stop the progression, but not cure it.

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Moonpie

I hope you can call your doctor & get some answers. I can't speak to the pregnancy aspect, but I did have some vision loss, when I had an aneurysm in my brain that was pressing against the optic nerve, causing blind spots. Once the aneurysm was treated,  my vision slowly returned to normal. Before the operation, they would not tell me if my vision would improve, I think they are afraid to give the wrong answer, but it did come back. Try & be positive, ladies who have had, for instance high blood pressure, during pregnancy, frequently see it return to normal after birth. Call your eye Dr & ask him to give you his honest opinion. I'm sorry you have all this additional stress at this time. Don't make any hasty decisions.

 

Please insist on talking to an eye specialist.

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lj1000

Hi

Thanks for all your responses.

As I'm now approaching 28 weeks I'm definitely feeling more positive about things. The oedema hasn't progressed still the same as last month. Although last week I had panretinal laser to my left eye again as the new blood vessels still are problesome. Some days my vision is better than others but I'm getting there. Now the main issue is the lack of depth and texture that comes from the oedema and as I'm a chef iv been off work since the start of December but that I don't mind so much. And im coping with university work just about. Knowing that it's now the final countdown to the baby arriving makes it easier. Iv now had the oedema longer than I have left pregnant. Still no solid answers from the retina specialist or consultant about what will happen once iv had her. He said it could recess, but if not I can be treated with anti inflammatory injections which most people see good results from. I was offered last week under special circumstances the steroid implant into my eye but warned a high chance of having glacoma or cataract from it so chose to not have it especially when there's a chance once iv delivered it may resolve itself. If it progresses I may change my mind on this. But feel the risk isn't worth chancing while I'm managing at the moment.

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jwags

My vision is still good, so they are just watching the macular edema for now. Mine was caused by my diabetes. When it gets worse I will need the injections but they don't want to do it until a last resort.

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