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KickStart101

##Prednisone :s .......

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KickStart101

:thumpdown .........is evil for me.

 

Since I was hit with a full 5 week attack of Shingles

back in Nov./05, my Rheumatoid Arthritis(RA)decided to

go totally out of control. I put up with the bad pain(since

I have a high pain tolerance), finally gave in since I can't

get it under control myself. My sugars had been good for

me as usual(3.8mmol - 8.0).

 

I called my Rheumatologist to ask if he'd phone in some

Prednisone for me at my Pharmacy which I picked up that

evening. He did first suggest the Cortisone injections, but

I reminded him I had those yrs. ago and all it did was make

my knees rubbery feeling and didn't do much for the pain.

(But also didn't effect my blood sugar much either. Which

was nice).

 

So I've been on this evil drug for 1 week and I am cutting

myself off of it slowly. My sugar levels have been outta control

for 5 days. Normally, I take 32u TDD. Today, I took 55u TDD

and my sugars have been 13.8, 11.3, 18.6, 6.8, 8.1, 13.5, 19.6,

5.2, 10.8. I had a bad headache(temples)most of the day, now

I noticed my right lung has a slight pain(odd, probably has irritated

my Asthma :( ), eye-sight's a bit blurry. But HEY...my joints

haven't felt this good since Nov/Dec. :) Has anyone else had

this problem with Prednisone/Diabetes?? I was on Prednisone

also many yrs. ago but my testing wasn't as important to me at

that particular time.

 

All I can say for the RA is that Accupuncture is looking even

better now. I can't stand my sugars being crazy high like that

plus all that Insulin. Oh and all I had to eat today was 2 eggs

with cheese melted on top, 2 coffee, lots of water, 1/2 cup of

all-bran, 3/4 cup of beef stew(that's more than I had the other

days).

 

Anyhoooo, just venting, sorry so long,........Thanks For

Listening. :1eye: :hello: Your The Best. ;)

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Cinnabon

Kicky....sorry to hear u are feeling this way. Prednisone is a powerful drug, be very glad it doesnt mess with your BS. I have heard of so many that have no other choice and must take it and have their BS way out of control.

 

I hope you feel better soon.

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Tokyo Cate

Gosh! I am so sorry to hear that things are going so poorly for you these days. Pain is a terrible thing to have to deal with daily and I wish I had some advice for you, but I don't.

 

Best wishes and I hope you manage to regain your good control and ease your pain at the same time :nurse: .

 

Poor you!! :flowers:

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KickStart101

:hello:Thank you So Much Mars and Cate for your Concern, Support

and Good Wishes. I'll do okay. I'm taking 2 of the Prednisone

instead of the 6 a day the Doc suggested. I have also brought

the 55 uts. of Insulin total down to 39 uts.(just 7 uts. more than

my normal). The 6 pred. plus my other drugs worked very good

for the pain but like I said I can't stand being outta control like

that plus all that Insulin. Now I think I had a taste of someone

who is IR or severe IR and I don't like it. Gotta say, it was like

injecting myself with water.:help: I'll take the higher level of pain

with the 2 Preds. instead of the high sugar levels and high Insulin

doses with the 6 Preds.

Thanks Again. :love:

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Tokyo Cate

I really feel for you, Carlie. I have an extremely low pain tolerance and can't imagine I would have the strength to make the choice you have made, though I will hopefully never have to make that decision.

 

Have you considered alternative therapies like acupuncture for your arthritis?

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TvBabe
:hello:Thank you So Much Mars and Cate for your Concern, Support

and Good Wishes. I'll do okay. I'm taking 2 of the Prednisone

instead of the 6 a day the Doc suggested. I have also brought

the 55 uts. of Insulin total down to 39 uts.(just 7 uts. more than

my normal). The 6 pred. plus my other drugs worked very good

for the pain but like I said I can't stand being outta control like

that plus all that Insulin. Now I think I had a taste of someone

who is IR or severe IR and I don't like it. Gotta say, it was like

injecting myself with water.:help: I'll take the higher level of pain

with the 2 Preds. instead of the high sugar levels and high Insulin

doses with the 6 Preds.

Thanks Again. :love:

 

I CAN relate :) I have Undifferentiated Seronegative Spondyloarthoropathy myself. When my USPA is in full flare I use in addition to my normal anti-inflammatories a topical anti-inflammatory (Pennsaid). Maybe ask your rheumy if they have a sample of this stuff and give it a try?

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KickStart101
I really feel for you, Carlie. I have an extremely low pain tolerance and can't imagine I would have the strength to make the choice you have made, though I will hopefully never have to make that decision.

Have you considered alternative therapies like acupuncture for your arthritis?

 

I really appreciate that Cate but through the same line, I've been

through a Helluva Lot through my life and I'm still alive and doing mostly

not too bad. My Doc's are always amazed that I am still doing well

enough to show up for my appointments. My Rheumy was the one

who said that I was Remarkable.:hmmmm: Still scratching my head

about that one...does he know something I don't????? Eh, I'm enjoying

Life as long as I can. I've got my Dad's high pain tolerance, not much

fizzed him. At age 77 yrs., he fell down at the Mall, got back up, got himself

a coffee and sat down to wait 'til Mom was done shopping. Two weeks

later, Mom noticed him limping a bit. (I had gotten him in to my Rheumy

10 yrs. earlier where he was dxd. with Rheumatoid). Our Rheumy took

exrays and was astonished that he was able to walk on what our Doc

said was the worst hip shattering that he had ever seen. That's my Dad. :)

I worry more about you with extremely low-pain tolerance so I hope

Diabetes is all you have. But you know, when it comes right down to it,

you will decide what is right for you at the time, more pain or not.

Oh yes my Dear, I have certainly considered Accupuncture, many

years ago and I know I will soon be using their services to see if they

can help. I know there are "REAL" and "GOOD" ones out there, the trick

is avoiding the "FAKES" and "LOUSEY ONES". I mean there isn't a gold

medal hanging on the door of the Good ones. It will be Alot of hassle for me

finding the right one, which I don't look forward to. Talk to ya soon. ;)

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Tokyo Cate

Amazing story about your Dad. I hope you really are blessed with that tolerance. I am a great big cry-baby and I hope I don't get the arthritis that runs in the family. If I do, I will cope, I hope.

 

My step-dad was skiing with my step-bro on Valentine's day and fell, broke his hip and is already swimming and hopes to be back on the golf course in a few weeks. Some people are way tougher than others (and perhaps he is fortunate to have had that injury while competitively young--70).

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KickStart101

What Arthritis is in your Family? And NO I sure hope you don't get it.

Do you know that there about 175 different types of Arthritis out there???

Amazing.

 

WOW, Congrats to your Step-dad. Good for him. :) I think it's time

:top: someone else beat that Tiger, eh?? Mike Weir got the Green Jacket

a while back, now it's time for your Dad. ;) I'm glad he is recovering well.

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Tokyo Cate

Thanks, Carlie. He has had an amazing recovery. It was only one month ago and he is already back driving a standard-shift car, walking without a walker and exercising.

 

He and my Mom were here visiting in September and hinted about making a return trip shortly before his fall--hopefully they will still be able to make it out again. It is so great to have family around, even when it is only for a short time. It doesn't look like I will make it back to Canadian soil until November at the earliest, so it would be good to have someone from the family come out. I will keep working on them.

 

As for you and your pain management, I am really glad you have your Dad's tolerance, but hope your need for pain management decreases. It is a terrible disease (and I had no idea that there are 175 different types of Arthritis). That is confusing. I don't know what kind my Mom, Nana, great-Aunt have, but I know that none of them are enjoying having it in their lives.

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KickStart101

OOOOOOOOOOHH!! I'm sorry you CAN relate. Ya, I googled your

"owned" title(didnt think google would accept it)but it did. Wow,

that doesn't sound any more fun than mine. I would be really peed

off if my sciatic nerve was in jeopardy.

My VON(substitute) came over one day(yrs. ago) to give me the

hypodermic Myochrisine shot. Well, don't you know she hit that nerve.

High pain tolerance...out the window. I had been standing when she

did it, I immediately collapsed to the floor in severe pain. She

said I was having an Insulin reaction(to get her out of a mess I guess)

started shoving applesause down my throat, hoping to choke me I'm sure. :)

Hubbie arrived home for lunch thank God, picked me up off the floor and put

me on the couch and told her to go away and not return. I told my Physio-

Therapist about the incident when she came over a couple days later and

I said Thank God Hubbie had given me the cordless phone cause if there had

been a fire, I woulda been Crispy Crush. Well, she laughed so long I thought

she was losing it, but no. :) Four hours later, I felt better.

I have tried creams before and it didn't make a difference unfortunately.

Most pills and shots don't work either. Do you know what's in it? Does it work

for you?

Have you ever been in a Clinical Trial for Arthritis? If so, how

did it go? I was wondering. I recently received the papers for a Clinical Trial

for RA. My Hubbie said, "NO" after he read it, but it is my decision. Could I

email it to you to see what you think? I don't know if you know much about

these trials. If not, that's okay too. It is up to me. They just happened to

arrive that day, when on the news they were saying that a British Guy was

rushed to Hospital after having a bad reaction to whatever drug they were

using in their Clinical Trial. :( Oh well...........Have a Good Day. :D

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KickStart101

You're Welcome Cate. :) I'm so glad to hear he is doing so well and

so quickly. Spry Young Lad, isn't he? ;)

You're so Lucky that your Parents go to Tokyo to see you. I sure

agree that loved visitors from Home lift the Spirits.

Thank you. Ya, when I first got RA, there were supposedly 130

different types, then it grew to 150. Actually, it said 200 types the

other day on the news, so now I'm starting to think someone is making

some of these up. So I put it at 175 types. I mean what, are these

Arthrities multiplying??? And no I seriously do not want to look them

all up. I do know there are alot of types though.

Gee, you should know what type of Arthritis is in your Family, just in

case, in the future someone else in your Family gets it. Actually, my Cousin

and I were just discussing this, this week. He got Cancer but he doesn't

know much of his Father's side of the Family so he doesn't know if they had

this type. His Doc asked and he didn't have a clue.

Ya, I'm sure they are not enjoyng it. It would be Awesome if no one got

hit with Bad Diseases, eh? Well, :motz: I think I'm Ranting. :D Take Care.

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KickStart101

Sorry Michelle, I shouldn't have put you in that spot concerning the

Clinical Trial email. Please Disregard. :)

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TvBabe
Sorry Michelle, I shouldn't have put you in that spot concerning the

Clinical Trial email. Please Disregard. :)

 

Actually I missed your post about the clinical trial question :)

 

Clinical trails for my type of "arthritis" are rare since most rheumy's think USPA is "rare". My rheumy is a leading researcher on USPA so if a clinical trial happened in my area I'm positive she would recruit me but so far no such luck.

 

She told me that 1 in 10 people have osteo arthritis, for RA it's 1 in 30 people. USPA is 1 in 3000 people to give you an idea of the stats.

 

I didn't expect the Pennsaid to really work for me either since most creams in the past had little to no affect but when you are realy deperate you'll try anything so I asked my doctor if there was anything I hadn't tried and he suggested the Pennsaid. He gave me a "sample" of it so I didn't have to invest alot of money and I was pleasantly surprised that it actually did help. Unfortunately for me I am on the highest dose of my anti inflammatory so increasing the dosage during "flares" was not an option. The Pennsaid can help me make it thru "flare" periods.

 

I'd be interested in reading up on your clinical trial. I suspect your hubby's reaction is related to that British "mishap" (YIKES).

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KickStart101

[

 

Hi Michelle: I looked up the Pennsaid, sounds interesting. I'm

just skeptical about any creams working on me, since I've tried

some to no avail. It says it is an alternative to Ibuprofen and

Naproxen. That's not my NSAID however, those didn't work for

me. One problem during a "flare" most of my joints are involved,

I'd need a barrel of the cream to cover them all. Then I suppose

you are only allowed to use a certain amount since the drug in the

cream is absorbed through the skin into your bloodstream. Anyhow,

I 'll get a script from my Doc next time I see him.

I am doing much better now that I've cut the Prednisone from

6 pills a day(had out of control sugar levels but felt great) to 3 a day,

(where my sugar is mostly back to my good normal with about

30% of pain)Not bad, will do.

Gee, only 1/3000 people. That sure is infrequent. Your Rheumy

sounds like a good one. Mine also does the research. It sure would

be nice if someone found a cure for something, eh?

Okay, if you're sure, I'll email the Clinical Trial forms to you

soon. As I said, I don't know whether I'll participate yet. This one

is for Phase 3, the next one is Phase 4. I just wanted to know what

your opinion on it would be.

:D No my Hubbie didn't say NO to me participating in the Trial

because of what happened to the Guy in the British Trial(although it

definitely didn't help), it was something that was written in the Trial

info. I'll bracket it before I email it to you. Thanks. :)

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TvBabe

Actually the Pennsaid is a liquid, highly concentrated. I didn't think it would do much for me either and I have to admit I was pleasantly surprised at how effective it was. Ask your doctor for a "sample" of the stuff, my GP gave me a sample so I didn't have to invest (financial) until I knew the stuff worked :)

 

Looking forward to reading that Clinical trial stuff over :) My Rheumy is a leading researcher on the Spondlyoarthoropathies (a specific type of arthritis). She's tough to get into because she's constantly being asked to speak at Conferences so she's out of town ALOT!

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KickStart101
Actually the Pennsaid is a liquid, highly concentrated. I didn't think it would do much for me either and I have to admit I was pleasantly surprised at how effective it was. Ask your doctor for a "sample" of the stuff, my GP gave me a sample so I didn't have to invest (financial) until I knew the stuff worked :)

 

Yes, I will certainly ask about the Pennsaid when I see my Rheumy next

month.

 

Looking forward to reading that Clinical trial stuff over :)

 

One of the Ladies from the Rheumatology Research Associates(RRA)phoned

me this morning to ask if I had received the study info and if I had any comments and/or questions. Things have been busy as heck here and I hadn't absorbed what the info said, so I sat down and read it today. Now I know. I also realized that this is not the Study my Rheumatologist had meant in January, for me to consider. The one he mentioned involved orals and a placebo. One of the orals was a drug from the "Vioxx" (cox 2 is it?) Family. I forget what the other drug was.

Whereas with this Study I saw in the paper and phoned for info uses monthly infusions. I wonder if it is comparable to Humira and Enbrel. They both can

cause Cancer can't they? Of course, the anti-rejection drug I'm on now for RA also causes Cancer. I hate drugs. Anyways, there seems to be a few

Clinical Trials going on around here for RA. I shall email the Study info to you shortly. :)

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SueM

Hiya I take pred every day due to addison's disease and have always been told to use 2 units of insulin for every 1 mg of pred.

What ever you do do not suddenly stop the pred or reduce it too quickly because you will end up going into shock from the withdrawal this shock can be fatal within 20 mins unless treated by IV steroids.

 

Also if you split the dose AM and Lunch time it will even out your blood sugars a bit more. Do not take steroids in the evening because you will be bouncing off the walls and wont sleep.

Pain will also rise your blood sugars so take that into account too.

Hope you feel better soon.

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KickStart101
Hiya I take pred every day due to addison's disease and have always been told to use 2 units of insulin for every 1 mg of pred.

What ever you do do not suddenly stop the pred or reduce it too quickly because you will end up going into shock from the withdrawal this shock can be fatal within 20 mins unless treated by IV steroids.

Also if you split the dose AM and Lunch time it will even out your blood sugars a bit more. Do not take steroids in the evening because you will be bouncing off the walls and wont sleep.

Pain will also rise your blood sugars so take that into account too.

Hope you feel better soon.

Hiya Back Sue: :hello: Thanks for the info. Wow, Great Job on

your part, having Diabetes for 41 yrs. with NO complications.

Amazing. :top:

 

I've usually been the opposite of what stats say. I've had severe

RA for about 22 yrs. and it didn't effect my sugar levels much more

because of the pain. Before this Prednisone, I was taking usually

32 uts. TDD.

 

Whoa. :ahhhhh: You say I should be taking 2 units for 1 mg.

Prednisone?? Well, for the first week, that would have meant taking

60 units Insulin just for the Pred. plus 32 units for my regular Insulin.

That's 92 units TDD. :1eye: Where would I put it aLL?? No Way.

That much Insulin wouldn't be good for me. More like a bandaid to

look after the Pred. Instead I weaned myself down to 15 mgs. a day,

so I only take about 9 or 10 units more Insulin(41 units TDD). I don't

feel as Great as I did on the 30 mgs. Pred., but as I said I can tolerate

alot of pain, so I'm doing not too bad. The Lady co-ordinating the RA

Clinical Trials(if I decide to participate)said I was only allowed to take

2 Pred. a day along with my other drugs.

 

 

Thanks for mentioning the result of stopping the Pred. quickly.:rolleyes:

My Rheumy said NOT to stop the Pred. without him knowing, but he

didn't say why. I've been on several drugs that needed slow weaning,

which I did fine. He said one would cause a heart attack. Oh I take the

Pred. at first meal of the day and with supper.

 

Sorry to hear that you have Addisons. From what I've read, that

sounds bad also. I hope that you are doing OK. :) Yes, I hope I feel

better also. Thanks. :five:

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